TS Awareness Month is May 15 - June 15, 2009
Bayside, NY – May 15, 2009 - From May 15 to June 15, the Tourette Syndrome Association (TSA)—the only national, voluntary health organization for people with Tourette Syndrome (TS)—joins the hundreds of thousands of families affected by TS to help raise awareness of this baffling disorder during National Tourette Syndrome Awareness Month.
Marked by involuntary body movements and vocal sounds called “tics,” it is estimated that some 200,000 Americans have the disorder, with millions more manifesting associated conditions. National Tourette Syndrome Awareness Month, which was first established by TSA in 1997, provides an opportunity for the TSA, its chapters and others in the TS community to educate the public about this much misunderstood and misdiagnosed condition.
Throughout the month, local TSA chapters across the country will work to raise awareness, increase education and reduce stigma associated with TS. One such event is Government Relations Awareness Week from May 25 to June 1. During this week, TSA encourages its chapters and families to hold district meetings not just with elected officials, but also with community leaders to raise local, state and federal elected officials' awareness of issues impacting families living with Tourette Syndrome.
Some of the dozens of awareness events taking place across the country organized by national TSA Chapters include:
Georgia Chapter: Twitch & Shout Adventure Week, May 31 – June 5, Cape Twin Lakes in Winder
New Jersey Chapter: TS Day, Golf Tournament and Dinner, 12:00 p.m., Old York Country Club, Chesterfield
Long Island, NY Chapter: Family Fun Day, May 30, 1:00-5:00 p.m. at Jericho High School
Texas Chapter: Jazz Fundraiser, “An Evening of Jazz -- I Groove to my Own Move." May 15 in Dallas
Pennsylvania Chapter: Annual Legislative Breakfast, May 13 at 10:00 a.m. in the Capitol Building to show appreciation for the work of the state’s legislative leaders and promote awareness about TS
New Mexico Chapter: Annual Picnic, May 30 at 12:00 p.m. at Roosevelt Park in Albuquerque
Utah Chapter: Various school presentations throughout the month and a contest for Chapter T-shirt design
In addition, as part of the ongoing program partnership between TSA and the National Center for Birth Defects and Developmental Disabilities at the U.S. Centers for Disease Control and Prevention, now in its fifth year, a dozen professional education and outreach programs for medical, school-based and allied professionals, including sessions on Comprehensive Behavioral Interventions for Tics (CBIT) will take place during TS Awareness Month, including programs in Huntington, WV; Tulsa, OK; Lawrence, KS; Ocean City, MD; Keaau HI; Oakley, KS and Goldsboro, NC.
Marked by involuntary movements and vocalizations called tics, Tourette Syndrome is an inherited neurological condition frequently misunderstood and misdiagnosed, affecting more than 200,000 Americans. Founded in 1972, the national Tourette Syndrome Association celebrates 37 years of service to the TS community worldwide. As the only national, voluntary health organization for people with TS, the TSA has a three-pronged mission of education, research and service and directs a network of 31 Chapters and more than 125 support groups across the country For more information about Tourette Syndrome, Tourette Syndrome Awareness Month or any of the events listed, please view additional pages at the Tourette Syndrome Association site.
Media/Press Inquiries: 718-224-2999, ext. 236; email: firstname.lastname@example.org
[My apologies for not getting this announcement posted sooner. I think Hubs’ chemo brain is becoming contagious.]