Wee Hours Update

This is the first time I’ve been online on my laptop in eons, it seems. My son has the charger for my laptop, so I’m stealing my friend’s power supply for a bit to get enough juice to sync my phone and get caught up a little.

First off, we’re home. My God, does that ever feel good. We both nearly kissed the sidewalk when we got out of the car. It made us realize just how long the hospital stay for the transplant could/might/will feel.

On that note, we fired Dr. Waffle Cone today. After discussing his behavior and tone with some of our doctors and nurses at Kaiser, we were advised to can his ass. We’re letting our Kaiser transplant coordinator handle the actual logistics of that process because we felt it was 1) important she know what had transpired and 2) one of the reasons we have a transplant coordinator. We suggested a couple of other transplant doctors there we’d be happy to work with, just not Dr. WC. I believe I may have said, “We’re happy to work with anyone who understands my husband wants to pursue aggressive treatment and doesn’t appreciate being encouraged to go home and die.”

Bob’s inpatient chemo went smooth as butter. That boy loves him some chemo. Bob will now have daily blood draws and neupogen injections to boost his white blood cell counts as bendamustine is apparently notorious for killing the immune system in short order. Let’s hope it kills some tumors in the process.

We’ll meet with Dr. W (not to be confused with Dr. Waffle Cone) next week to follow up, I believe. Hard to keep track of all these appointments, new meds administered (I must have input 10-12 new medications into the iPhone app I use to track Bob’s chemo & medications just this past 3 days), etc.

Keep those prayers and cancer-killing vibes coming. We cannot thank you all enough. The myriad ways you support us continues to be a fountain of strength for our family.

And now, because I am downright exhausted and so damn happy to be sleeping somewhere other than a dialysis chair with my body folded into the shape of a taco, I’m going to crawl into bed with my husband.

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Comments

[michele]

So glad you're home and rid of Dr. Waffle Cone. Much love to you guys.

[Justine Kilkerr]

Thank God you ditched Dr Waffle, and that you're home. Sleep well. Also, I'm sending you my strongest cancer-killing vibes. They worked on my cancer when I was 20, so I'm hoping they're going to fuck cancer right in the eye this time too.

[Eric Thomas]

I'll not eat Dr. Waffle Cone's namesake again! He won't get another cent from me in the form of royalties from his delicious invention. Just please if you happen to work with Dr. ReesesPeanutButterEggs, or Nurse WendysVanillaFrosty, do your best to get along with them. Much love.

[Janet Isserlis]

glad you're home. prayers and fuck cancer and love

[O'Neal]

Love you lady! XOXOXOXO

[Beefranck]

My thoughts and prayers are with you.

[Tina Cruz]

So glad you are home and in bed with your man. That's where you need to be. Hang in there, we are praying.

Best decision to get rid of Dr. Waffle. I cannot imagine how he sleeps at night.

[Jeff]

Sooooooo glad to hear! Would love to pour Bob a nice tall glass of the cancer killing cocktail. Followed by a tall cocktail of "his" choice! JuJu'ing with all my might.PS. I have a Stanford appt tomorrow, dare I ask what Dr. dick-in-mouths real name is so I may take an excursion down his way and offer him some "advice" on life, bed side skills and how not to piss off the wrong people?!?!?I have to say they have some of the worlds most preeminant physicians who just happen to beLOUSY DOCTORS.

[cancerninja]

so glad you're home and that the kaiser peeps seem to be helping you. sleep well.

[Mr. Lady]

They are coming, hard and fast, and not in the dirty way I know your brain just went to. Perv.

And that's why I love you.

[califmom]

Dammit, I'd grabbed my ankles and everything. ;)



Love you, woman. Now what do I have to do to get you to follow me on Twitter? Blow an elephant?

[Nancy]

Welcome home. Nothing feels better than sleeping in your own bed.

[Lex (@laprimera)]

So glad you were able to give Dr. Waffle the boot! Keep kicking ass and know that I'm one of many praying and sending kick ass vibes for Bob in his fight.

[D]

Thinkin' of you all & sending light to you on this impressive journey.

Excellent work ridding of unhelpful aspects.First: Dr Waffle Cone. Next: Cancer

yah.

[Al_Pal]

SO glad you got to be at home for a change--Ooof!

xoxoxox