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« Wordless Wednesday | Main | In Bed With My Man »
Monday
Mar152010

Dear Dr. Waffle Cone, You Uplifting SOB:

Description unavailableImage by califmom via Flickr

I understand that you couldn’t, in good conscience, proceed with my husband’s transplant because it would kill him.

I understand that the CT showed the radiation did nothing to slow or stop the progress of his cancer.

I understand that there are very few options left for chemo to treat him, and those options may not work.

I understand you do not want to take drastic measures only to have him die on your watch, in your hospital, under less-than-desirable conditions.

I understand you didn’t like telling us he had only weeks or months to live, but certainly not years.

There are a few things, however, that you do not understand.

My husband loves to prove people wrong.

He likes to nod along, listen to what you’re saying, take it all in, then go do it his way.

He’s not calling hospice.

He’s not signing on for palliative care.

He’s not done with the battle.

He’s not giving up.

He hasn’t even started.

We may not see you back at Stanford, but mark my words, he’s not leaving this planet without an actual fight.

He will find someone to give him chemo, because he loves that shit. Makes him feel better every time he gets it. Shrinks his tumors, too. (It just doesn’t last for two fucking months while you all sit around wondering what to do.)

He will find someone ready to roll with the transplant quickly after he gets the chemo instead of diddling around with a fucking schedule for weeks on end while the cancer grows back and then acting like it’s novel when it does.

And if, by some strange twist of fate, he’s wrong and you were right, he’ll flip you a high and mighty finger on his way down in thanks for your endearing support. Because, really, we understand you need to be able to sleep at night.

Smooches.

P.S. I forgot to ask, were you going to swing by and explain to our kids that their father had "put up a good fight" and should just go home and die? Nah? I'm guessing your kids, if you have any, are probably grown. Maybe it'd be a little easier to explain to them why you were deciding to throw in the towel. Ours aren't. You don't know that, though. You've never asked about them or met them. I understand.

P.P.S. When I picked up my purse and closed my notebook, that was a sign I was ready to leave. I didn't need you to keep talking to make yourself feel better. I needed to get the fuck out of there. So did my husband. That's why he kept cutting you off. You really needed to feel better. Glad we could be there for you. It must be hard to tell people to give up.

P.P.P.S. I'm probably just going through those stages of grief and Dr. Waffle Cone is a lovely person we'd all enjoy having over for dinner and drinks. Life of the party. You understand.

Reader Comments (71)

I can hardly stand to read this and less able to write anything, what can anyone say except DO NOT GIVE UP.
March 15, 2010 | Unregistered CommenterDarryle Pollack
YOU ARE A FUCKING WARRIOR AND YOUR HUSBAND IS THE MOST STRONG PERSON I HAVE HAD THE PLEASURE TO KNOW. I want so much to just suck up and take away this fucking cancer. I pray all the time and the first call I made tonight was to my parents who will continue to pray their hearts out for your family. Leah - on a personal note = I'd give everything and anything to take this pain from you. Please know HOW FUCKING MUCH I LOVE YOU AND HOW MUCH I LOVE BOB AND HOW MUCH I LOVE DREW AND AUNNIE.
March 15, 2010 | Unregistered Commenterdenise
Wow. You have my sympathies and my admiration. If good thoughts count you have them in spades. Hang in there...
March 15, 2010 | Unregistered CommenterEllen Fitz
As I sit here reading this and crying and feeling totally helpless, I wish . I wish. I wish. What do you need from us. What can we do? Just know you have never been alone and never will be. We have you guys surrounded in love.
March 15, 2010 | Unregistered Commenterblanddiva11
thank you neecie.
March 15, 2010 | Unregistered Commentercalifmom
love is good. i'll take that. ;)
March 15, 2010 | Unregistered Commentercalifmom
I don't know how the both of you do it. Where other people would have caved in, broken down and given up the fight, you keep going. I love you guys. Keep fighting the good fight and we'll keep cheering for a knockout.
March 15, 2010 | Unregistered Commentermichele
Kick ass, Leah and Bob! We love you both!
March 15, 2010 | Unregistered CommenterAmanda S-K
Fuck yeah! You guys keep fighting and we'll keep chanting FUCK CANCER!
March 15, 2010 | Unregistered Commentererinmargrethe@gmail.com
Your husband is a great person. Don't stop fighting! Though I have to say, palliative care is something that can help in the last few days of a person. It is not a shame to accept it. i am a palliative care nurse and to me it sounded as if people who do accept and use this offer are weak. But they're not. I'm pretty sure you didn't mean to insult. I'm just sayin'. Anyways, I wish you and your husband strenght and the will to fight on. Don't give up!
March 15, 2010 | Unregistered CommenterLizzie
Give up?! Please... what a ridiculous idea! I am glad you are both going to keep fighting with everything you have.!
March 15, 2010 | Unregistered Commentertoplessmama


Thank you. I think what you do is a blessing. Hospice and palliative care are an important part of the end-of-life process and a true gift to the person passing and the family. 
March 15, 2010 | Unregistered Commentercalifmom
again. still. yes. yes exponentially.all my love,
March 15, 2010 | Unregistered CommenterJanet Isserlis
Thinking of you guys. You are terrific. Stay strong and fight it.
March 15, 2010 | Unregistered CommenterMarta
Never stop. Never give up. Keep going.

ANYTHING is POSSIBLE.

Make it happen.

I am praying
Keeping you all in my prayers - FUCK CANCER!!!!
March 15, 2010 | Unregistered CommenterEvelyn
We keep hearing speeches like this from my dad's oncologist. He has a grade IV glioblastoma multiforme, it's inoperable, and we'll be 6 weeks in before we know whether it's responding to radiation or chemo. My dad is 74 years old and in the five weeks since his diagnosis, he's lost the ability to read and now needs an illustrated guide to remember the names of his children and grandchildren. And his wife.

I wasn't there when they told him and my mother that there wasn't much hope, or time. But I really would have liked to kick him in the face when my mother told me what he said. If there's no time or hope, what are we doing having chemo and radiation and three therapy appointments a day? What do we have if we don't have hope? How do they expect us to have his back when all they can give us is the overwhelming sense that we're just driving him from appointment to appointment while you bill our insurance company and waste our time?

Fuck cancer, and fuck the doctor. Keep fighting.
March 15, 2010 | Unregistered CommenterMolly
Fuck Dr. Waffle Cone, want me to come out there and give him an East Coast beat down?
March 15, 2010 | Unregistered CommenterTraci on Cape Cod
My Mother-in-Law has been fighting cancer for the last 2.5 years. Every time the doctors said we should say goodbye, she kicks its ass. She's still fighting, but I swear she's stronger than when it all started.

Screw giving up, and screw that doctor for suggesting it AND for wasting your time.
March 15, 2010 | Unregistered CommenterBeefranck
Fuck Dr. Waffle Cone. Just watch, a couple months from now, Bob's gonna come tap-dancing into Stanford and Waffley's gonna crap his pants!! Keep fucking that cancer, we've all got our middle fingers out and cheerleader getups on for you two. Anything you need. Just holler.
March 15, 2010 | Unregistered CommenterLiabolicious
You and your husband are awesome, and you go and you fight like hell!!!!



March 15, 2010 | Unregistered CommenterErinmack/Irregardlessly
Best words I have heard. Fuck Cancer.



March 15, 2010 | Unregistered CommenterQutecowgirl
fuck that shit! fight on!

sending you a thousand hugs!
March 15, 2010 | Unregistered CommenterSandy aka chatblanc
You rock! Keep fighting. Your voice is one that needs to be heard. Much love to you, your husband and your family!
March 16, 2010 | Unregistered Commentermel
Oh man - he's a dick. You rock. Keep being strong Leah.You are surrounded by love.

XOXOXOXO,K.
March 16, 2010 | Unregistered Commenterkaren Polinsky

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