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« I Can't Pray | Main | I Heart Chemo »
Monday
Apr132009

How Do You Do It? You Just Do

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Image by califmom via Flickr

I was tweeting (chatting) with an acquaintance on Twitter during Hubs’ second day of his first cycle of chemo. I made a remark about it being a shitty way to spend a Monday. She answered back that she new exactly what I meant, having just finished a 2 1/2 year stint of chemo with her daughter. I replied that I couldn’t imagine what it would be like to go through this with a child, but that I wouldn’t have been able to imagine going through this with my husband either.

You just find yourself in this position.

You don’t get to plan for it.

Or choose it.

Or imagine it.

And even when it feels like the weight of the world, you just do it.

She said she understood completely. That she was often asked how she did it, and she said, You Just Do.

Now, don’t go thinking I’m Martha Fucking Stewart. I am not. My house only looks decent because my parents, who kept all the genetic material necessary to be productive members of society to themselves (and shared a little with my brother), came to visit and worked their asses off weeding, organizing, cleaning, etc.

I keep things clean, and I have housecleaners who come every week to do the big stuff. Honestly, I’d rather spend my time with my family than with my hand in a toilet. I contribute to the economy. It makes me a smidgen less bitchy (every smidgen counts). It’s a good thing.

When I say You Just Do, I mean you just do what needs to be done. That means that priorities shift. It doesn’t mean that everything gets done. It means the most important things get done. It means that you make sacrifices, change your way of doing things, modify the “house rules” and find alternatives to favorite foods and pastimes.

Part of Just Doing It has meant developing into germ phobic freaks. Hubs’ white blood cell count is at the mercy of chemo. It can and will knock his neutrophils down after each cycle, meaning that he will need Neuprogen or Neulasta injections to help bring his counts back up. But, in that limbo period, he’s basically a dude without an immune system.

Since we’ve always been a rather healthy family, and shun the anti-bacterial obsession as overkill for those with healthy immune systems. This means my children are not accustomed to us being obsessive about anti-bacterial wipes, sprays, and excessive hand-washing.

Fortunately, they’re homeschooled. So, we don’t have to worry about what they’re bringing home from school, and Hubs works for the kindest people who treat him like he is family, allowing him to work from home as much as needed to protect his immune system.

That said, we’re all going to end up with a serious case of OCD when this is all said and done. We already have Tourette Syndrome, a cousin of OCD, in the mix. Why not?

After Hubs’ blood work results from today came in with low counts, we kicked into full GERM NAZI MODE. He goes in for the next two days for Neupogen injections which should bring his counts up within the next week, hopefully in time for his next scheduled cycle of chemo on the 24th. This is frustrating, because he feels great, looks great, but just has no flippin’ immune system.

Until then, we’ll be maintaining contact with the outside world via The Interwebs and techie stuff like that. Maybe I should add Monk to our Netflix queue.

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Reader Comments (15)

yeah you just do it don't you.When life throws SHITTY curve balls at you, you take a deep breath and just deal...what else are you supposed to do?
April 13, 2009 | Unregistered CommenterCrunchy Carpets
Just get out the pooper scooper.
April 13, 2009 | Unregistered Commentercalifmom
In general, people can take much more than they think they can, just because they have to. That's what you do when you're ill yourself, too. I've had people tell me they'd kill themselves if they had my illness, CFS/ME (pretty supportive, eh?), and many people say they'd kill themselves if they got paralyzed or blind or whatever. Yet usually they don't.

It's actually quite weird that your husband can feel so great with barely any immune system. Usually even mild immune dysfunction can make people feel totally shitty (been there, done that, got the t-shirt). It's good that he doesn't, of course.
April 13, 2009 | Unregistered CommenterMaija Haavisto
I wonder if it's the Rituxan or lingering Prednisone that's helping him feelokay, or maybe that's he's already in great physical shape, and eats ahealthy diet. Whatever it is, he feels better than I do most days.
April 13, 2009 | Unregistered Commentercalifmom
It could well be the prednisone if he's still taking it (not sure what you mean by "lingering"). I know the best I've ever felt since I got CFS/ME has been on prednisone (the worst I've felt has been on prednisone withdrawal that lasted for eight months). Steroids can be both the best and worst thing in the world.
April 13, 2009 | Unregistered CommenterMaija Haavisto
He finished taking it a few days ago. That's what I meant by lingering. I'mnot sure what the half-life is/how quickly it clears. I do know that therash he had was clear while he was taking it, but is now back in full force,which makes me think the prednisone has worn off, at least somewhat.
April 13, 2009 | Unregistered Commentercalifmom
Ok, now that makes it weird. The effects of prednisone shouldn't last more than 24h (especially the feeling great thing). Generally people who've taken large doses for more than 3-4 days feel awful for at least a few days after discontinuing it... Your hubs must be a superhuman (I was going to add "not that I ever doubted that" but realized it would sound quite nasty, like I was suggesting he's a superhuman for putting up with you, or something).
April 13, 2009 | Unregistered CommenterMaija Haavisto
I think he just felt so incredibly
April 13, 2009 | Unregistered Commentercalifmom
I think he just felt so incredibly awful before, that having his lung function back, being able to sleep well, and having a healthy blood pressure and heart rate again mean he really does feel better.
April 13, 2009 | Unregistered Commentercalifmom
Hugs
April 14, 2009 | Unregistered CommenterSummer
Isn't that a funny thing... we know that we "don't know what we'd do if..." because we don't want to imagine it. For me, out of a superstitious fear of somehow bringing it on by even thinking about it.

Yet when faced with life's worst? We just do it. Because you only really have 2 choices: do it, or give up. And give up equals die, doesn't it? Life isn't just the good parts, it's also the bad ones.

(((hug)))
April 14, 2009 | Unregistered CommenterGeekMommy
Prezactly.
April 14, 2009 | Unregistered Commentercalifmom
Great post. I wish I could help scrub for you. Be sure to wipe off those Netflix DVDs. You know there's vermin in those distribution centers? They're all gnawing on copies of Ishtar.
Oh, so very true. Don't even want to think about it.
April 14, 2009 | Unregistered Commentercalifmom
your little neighbor down the street that likest to watch you children/animals knows all about that compromised immune system. she is sending positive thoughts and cleaning her hands with her costco sized bottle of purel as we speak.
April 19, 2009 | Unregistered Commenterk8lant0

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